Papa struggled with the ALS for many months, doing what the doctors
recommended, and trying different medications. Nothing was working, so they
decided to go see another doctor. There was a different specialist who lived
in Millsboro, Delaware. This is the one who told my fathers that the disease
was aggressive. That’s the word I heard my family use a lot:
aggressive. It sounds really mean. Some people can live 10 years
after they find out that they have ALS, and I wish I could say that my papa
was one of them, but he wasn’t. He found out in 2021, and you already know
how this story ends. They did everything they could, but that wasn’t much.
All they could really do in the end was make him as comfortable as possible.
Delaware was not a good trip either. I will probably never go to
Pennsylvania or Delaware. I might not even go to North Dakota again.
Delaware was the last time that my papa could walk. He had to stay in the
wheelchair for the rest of his life. It was hard to see him like that, but I
would rather see him like that than not at all.
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