Microstory 2226: Not Giving Up on Him

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If you’ve been following Nick’s social media posts over the weekend, you’ll know that his health fell into a steep decline. He was still alive, and still aware of me in the room, but he couldn’t keep his eyes open for more than a few seconds, and he had a hell of a time speaking. His tremors went away, though. He was very still. I made the decision to keep him comfortable, and let him have the weekend. I was going to monitor him closely, and check him into the hospital if he did not get better in the next two days. Well, he somehow did get better. He was awake and alert this morning, and able to form full sentences. Sadly, his tremors came back too. It’s like his body shut down to take a break, and now it’s back to how it was last week. So he’s not cured, or anything, but I see it as a promising development. The doctors aren’t so optimistic. This is an unusual symptom for the type of prion that he has, but it’s not unheard of. He’ll go through dips, and come out of them as if he’s gotten better, but then he’ll go right back down. They want to keep him overnight to get a better read on the pattern that he’s on right now, but the dips don’t necessarily warrant a permanent stay, which is good. They expect him to recover from each dip. Now, if he starts having trouble breathing, that’s when things have gotten too bad for me to be able to care for him alone. But until that happens, the medical staff are willing to accept his wishes to remain in a more comfortable and familiar environment. He’s with PT in the hallway right now, trying to keep his brain and body active. The best way to fight the misfolded proteins is to exercise the good proteins. The disease is slowly taking over, so he has to be as much himself as possible. I’ll encourage to keep trying to formulate his own words for these posts to stave off the inevitable for as long as possible. He agrees that this is a good idea. And who knows, he may find himself regaining the ability to type it all out himself. I’m not giving up on him just yet.