Microstory 2226: Not Giving Up on Him

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If you’ve been following Nick’s social media posts over the weekend, you’ll know that his health fell into a steep decline. He was still alive, and still aware of me in the room, but he couldn’t keep his eyes open for more than a few seconds, and he had a hell of a time speaking. His tremors went away, though. He was very still. I made the decision to keep him comfortable, and let him have the weekend. I was going to monitor him closely, and check him into the hospital if he did not get better in the next two days. Well, he somehow did get better. He was awake and alert this morning, and able to form full sentences. Sadly, his tremors came back too. It’s like his body shut down to take a break, and now it’s back to how it was last week. So he’s not cured, or anything, but I see it as a promising development. The doctors aren’t so optimistic. This is an unusual symptom for the type of prion that he has, but it’s not unheard of. He’ll go through dips, and come out of them as if he’s gotten better, but then he’ll go right back down. They want to keep him overnight to get a better read on the pattern that he’s on right now, but the dips don’t necessarily warrant a permanent stay, which is good. They expect him to recover from each dip. Now, if he starts having trouble breathing, that’s when things have gotten too bad for me to be able to care for him alone. But until that happens, the medical staff are willing to accept his wishes to remain in a more comfortable and familiar environment. He’s with PT in the hallway right now, trying to keep his brain and body active. The best way to fight the misfolded proteins is to exercise the good proteins. The disease is slowly taking over, so he has to be as much himself as possible. I’ll encourage to keep trying to formulate his own words for these posts to stave off the inevitable for as long as possible. He agrees that this is a good idea. And who knows, he may find himself regaining the ability to type it all out himself. I’m not giving up on him just yet.

Microstory 2217: He Only Watched

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We’re at the hospital today for a check-up. There’s a lot that I can do for him. I can take care of his basic needs, help with physical therapy homework, and draw blood or run an IV drip. There are still things that a nurse or doctor needs to perform, though. He’ll probably be at the hospital about once a week from now on. While I was on their website to make sure we would park in the right lot, I found out that the hospital was putting on a little talent show. It wasn’t this grand, expensive affair, but the staff like to keep their patients active and in high spirits, so they do things like this sometimes. No one was being judged or ridiculed. Some of the talents were unimpressive by most people’s standards, like one elderly woman who just sort of slowly twirled around while she was looking up at the ceiling, waving her arms around occasionally. One of the radio techs beatboxed. It was a safe environment for people to be themselves, and maybe forget about why they were there. I don’t think that it worked for Nick, but it was worth a shot. He only watched, of course. There was no way I was convincing him to get up on that stage. He says that he wouldn’t have done anything like that on his best day. He’s not much of a performer, and has hated having to do things like that in the past, like for school. Lots of teachers told him that he would get used to it the more he tried it, but that never happened. Evidently, in his world, the culture assumes that everyone can do anything if they work hard enough at it, and obviously, that’s not true. This site was his way of reaching out to the world, and when I pointed that out to him, it actually seemed to resonate, so I’m hoping that means he’ll soon decide to inject his own thoughts back into it, even if that means he dictates what he needs me to type for him. One can hope.

Microstory 2118: Tiny Little Baby Boy

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I had a physical examination today. Some laws in this world are weird, and some of them are better than they are where I’m from. For others, I’m not sure one way or the other. I think my world would do this sort of thing sometimes, for when there were specific reasons to believe that the accused was in need of it, but here, they do it for everyone. There is an entire branch of medicine dedicated to making sure that people like me are fit to stand trial, or even just this small hearing. They call it Judicial Fitness, making this my Judicial Fitness Evaluation. I’ll go through more by the time this is over, and maybe more while I’m being monitored by a parole officer. This Earth, and this country in particular, is very concerned with the physical and emotional stability of their accused and convicted. I would be interested to learn what happened in history to turn this into a common practice. Were there too many bored doctors? Were there a ton of patients who were later discovered to have been unfit for legal proceedings, which resulted in severe damage to their welfare? Or maybe there was one highly publicized case that shifted perception. Either way, I don’t have a problem submitting to it. I have nothing to hide. Y’all already know, I don’t mind admitting to my medical issues; I’ve done that in multiple instances on this site. I believe in medical privacy, but I’ve personally never run into a situation that I felt I couldn’t tell anyone about, even if it would be “embarrassing” for a neurotypical. I’m trying to think of a story like that to prove to you that I don’t care, but nothing comes to mind. Perhaps I just don’t understand what other people’s threshold would be. I’ve had a few ingrown toenails, which required minor surgery, does that count? They sent a scope up my urethra to try to figure out my digestive issues. That’s not great, a normal person would probably keep that to themselves. Let’s see, I used to vomit from anxiety whenever I did something new. I guess that can still happen, it’s just that less is new than it was when I was a tiny little baby boy. I just called myself a tiny little baby boy, should I be embarrassed by that? You tell me. If those aren’t juicy enough for ya, I’m afraid that my current condition isn’t gonna help you either. I earned a clean bill of health from my physician, which means that I can attend my hearing tomorrow. What exactly the purpose of it is a bunch of legalese that I don’t understand, but I’ll try to recount it tomorrow, unless they throw me in prison right away, and don’t give me access to a computer. If that happens, my blog will just end. I don’t have any backup posts waiting on the schedule this time. Welp, it’s been real...or rather it hasn’t, because I’m making all of this up, ain’t I? Or am I? I am. Wait...oh no, I was right, this is all fiction.