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We had an uncomfortable meeting at the hospital. Some people who will not be
named have expressed interest in keeping Nick there for the duration of the
rest of his short life. They believe that I will not be able to provide him
the care that he deserves to be safe, healthy, and happy. Let’s start at the
end with that. Nick is happy where he is, and he’s the only one in the world
qualified to determine what will keep him that way. He’s not healthy, and he’s
never going to be healthy; he’s dying! I know, they’re worried about secondary
infections, but let me tell you, that apartment is clean. He kept it clean
before I got there, and I keep it clean now. Both of us understand the
importance of sanitation, and avoiding cross-contamination. Hospitals are full
of other sick people, many of whom can’t do all that much to keep themselves
and their spaces clean. I would argue that the apartment is better than that,
because we can keep him contained, and separated from anyone who isn’t up to
our standards. There are too many others in a facility. Lastly, safe? What do
you mean, safe? I know what they mean. They think that his fans are going to
come clamoring to see him—for autographs, selfies, or just to get in the way.
But you wouldn’t do that, would you? You respect his safety, his privacy, and
his need to keep his distance, right? Anyway, I argued my little heart out,
advocating for my patient to the best of my ability, and in the end, we won
out. We won, because this is the patient’s decision, and he wants to stay
where he feels comfortable. At this point in the progression of this awful
disease, that’s pretty much all he can ask for. As I’ve been saying, this is
terminal, and the prognosis is short. Even if he succumbs to a new infection,
it’s not like he was going to live a long and joyous life without it. Now I
have another fight ahead of me, but it may not be up to Nick, or he may not
care anyway. As you know, he’s my first patient since graduating from my
Lifecare Assistant class, and passing the exam. The hospital, and the agency,
are considering replacing me with someone with more experience. I can’t say
that I can blame them for believing that I’m not ready for this kind of
responsibility, but I one hundred percent am. I want to see this to the end,
and I hope that Nick feels the same way. We’ll have to see how that goes.
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