Microstory 2522: Patient Advocate

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I don’t work for the foundation. I am a professional Medical Advocate working for a medical outreach agency, which is commonly employed for patients who need a little extra help navigating the process. I’ve been doing this job since long before the Foundation was even the spark of an idea. Some patients get confused, or know their personalities and skillsets well enough to not trust themselves with being solely responsible for their own medical data. A healthy fraction of such patients have family members or friends who can help them through such difficult and complex processes, but there are others who aren’t so lucky. My agency has a long history of providing chaperoning service to patients who don’t want to be in the exam rooms alone with their medical providers. We help them ask questions, and understand the answers. We help them make their follow-up appointments, and fill their prescriptions. This is typically a paid service that you can find all over the world, but we can do it free of charge for Breath of Life patients through a special program where the Foundation pays for our services on behalf of their neediest patients. Again, I don’t work for Landis, but I’ve become particularly familiar with their practices and procedures, and can help each client get through the process safely and comfortably. Some of them are suffering from dementia, or related conditions, and require that one-on-one care. I tell ya, this is the most rewarding job I’ve ever had. Before this, I did a lot of crying, because I was handling patients who were at their worst. They weren’t getting better, and many of them remained my clients until they died. I’ve been to a lot of funerals throughout the run of my career. Well, not anymore. All of my patients live now, which is something I never thought I would see in my lifetime. I watch as a client with Alzheimer’s becomes suddenly lucid, and in a way that is not going to be undone the next time she sneezes or closes her eyes. This is it. This is what people like me have been hoping for our entire lives. I absolutely love it when a client stops needing my services, not because they die or can’t afford it anymore, but because they’re healthy now. And it gets me every single time. I guess I’m still crying, but they’re tears of joy now. I feel for my colleagues in the industry who don’t work here, who are still going through what I was before. They wish they could have my job, but there are only so many positions. They’re excited about the panacea. Even though it will mean the end of their jobs, they can’t wait for it, because it’s the best outcome possible. I’m pretty excited about what the future holds too.