Showing posts with label comfort. Show all posts
Showing posts with label comfort. Show all posts

Friday, August 8, 2025

Microstory 2470: The Empyreamax

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Before virtual reality and volumetric immersion holograms, people used to watch media on 2-dimensional screens. I won’t get into the whole history of film—you can look it up your damn self—but suffice it to say that they were extremely tiny compared to what we have here. This is the Empyreamax. It is the largest film auditorium by orders of magnitude. You would have to project a movie on the moon to be larger than this. Towering 22.2 kilometers over the surface, this image covers an area of roughly 5,030 square kilometers. You can see it from anywhere, though of course, the center has the best seats in the “house”. Or should I say they have the best beds? Since you’re looking straight up, regular recliners just won’t do. You can adjust it to your liking, but they lay down completely flat, and let you look straight up at the movie. Obviously, they’re quite comfortable, with the standard firmness adjustments, heating, cooling, and vibrating features. If you’re an organic who still needs to eat, each bed comes with an interface that allows you to order concessions. If you’re not in one of the designated viewing loungers, you can request a mobile interface, and they’ll deliver to you wherever. There’s a Castlebourne-specific three-word address for wherever you happen to be. Actually, one little problem I noticed is that you can input any valid Castlebourne address, and they’ll try to get there, even if it’s on the other side of the planet in a different dome, so I hope they fix that dumb little bug. You can bring your own bed, or sprawl out on a blanket. There are several swimming pools and lakes that you can float on while you’re watching. One couple came in with an autotrampoline. They lay on their backs, and let the motor bounce them as they were watching. It sounds distracting to me, but who am I to judge? As far as sound goes, the options are limitless too. You can connect with your conductive implants, or your internal speakers, or your external headphones. They have ground speakers and pedestal speakers as well, but those are only allowed in certain areas. And that’s because some areas allow for regular conversation, and some are quiet zones. They provide you with an interactive map, so you can find out where you wanna be. While the ground is pretty flat here, they also have some hiking trails, so you can kind of keep an eye on the film while you’re walking with your honey, so that’s just a little thing that I’m not sure people would ever want, but it might as well be there. It’s not like we’re short on space. Again just about everything is up to you. They have a movie playing all the time on the big screen, but it’s not the only one going. They also have smaller screens lining nearly the entire perimeter. Each one is about 100 meters wide, and 40 meters tall, with a capacity of around 750 people. There are 1,699 of these, allowing for 1700 simultaneous shows in total. I’m not sure how many people could be here at any one time, for the big movie, or all of them combined, but I’m guessing it’s a pretty high number, even though we’re not vertical, on top of each other, like other domes. I know it’s old media, but there are some really great gems here. I saw one the other day called The Mystic, and it was basically the best movie musical I had ever watched. Even if you’re not interested in what’s playing, you can request a time slot for a specific title, and use one of the smaller Ultramaxes. One thing I’m not sure is right or not is that you can’t request a private auditorium. You can choose a movie, if there’s space available, but once it gets into the system, anyone can RSVP for a seat, so just bear that in mind.

Friday, March 7, 2025

Microstory 2360: Vacuus, July 30, 2179

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Dear Condor,

Lol, I appreciate your offer to commit physical violence against my aggressor, but I should warn you that a lot has changed since I sent my last letter. Bray and I have gotten to know each other better, and we have found something between us. I know, it’s really weird. He’s about 18 years younger than us, but we can’t help how we feel. I honestly never planned on spending the rest of my life with anyone else. I never really connected with any of my peers. The gene pool is just so small. The truth is that the gap between us isn’t even the widest on the base. I don’t know how that sort of thing is received on Earth, but the stigma for us is long gone. In order to maintain our population, we’ve had to sort of ignore the social conventions of the past. I’m sure you think that it’s still a little weird, but I don’t want to just disregard our developing feelings. Maybe I shouldn’t be talking to you about any of this. You’re my brother, which makes it awkward, but we also don’t know each other very well yet, so that makes it awkward in a different way. I’ll spare you the details no matter what, but please let me know if you would rather not hear about it at all. I wouldn’t want to say anything that makes you uncomfortable. This is all I’ll say until I get your answer in that regard. Right now, nothing has happened between him and me, and it might fizzle out soon anyway. As I said, I’ve always seen myself more as a loner. Okay, I promise that that’s the last I’ll say. Thanks and sorry. On the other hand, we could discuss our love lives openly, that wouldn’t bother me. I know that you’re life has been defined by go, go, go, but have you ever gotten to know anyone special? Have you been looking for companionship since you settled down in the ocean platform? Again, you don’t have to say anything, this is just a topic that we’ve not touched on before, and I want us to feel comfortable being honest, if that’s even possible at this juncture, and through the detached medium of interplanetary correspondence. Sorry again! That’s it! I really won’t say anything more. To prove it to you, let me shift gears. You were talking about the people who did this to us; specifically who they might be, and what they might have been doing for the last 37 years. I’ve personally given up on trying to find those answers. I’m still mad about it, but all I think we can do is move on, and play with the cards that we’ve been dealt. We can’t go back in time, and choose a single planet together. If you want more information—if it’s eating at you—I will support you, and do whatever I can on my end, so don’t hesitate to be honest about it. I really mean that. There are still some stones on Vacuus that I can turn over if we agree that that’s what’s best. I love you, Condor. I want us both to be happy, and to experience whatever closure we’re looking for.

Not yet in love,

Corinthia

Friday, November 15, 2024

Microstory 2280: Peaks and Valleys

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I’m back home, and feeling much better. Don’t get me wrong, I’m still in a lot of pain, and it’s difficult to move around, but this is a far superior environment. Man, I feel like I’m so out of touch these days, bragging about my large house, and private medical team. I never wanted to become this, but you have to admit, healthcare is better without all those other sick people. Jesus, what the hell! Why did I just say that? And why am I not deleting, and starting over with a more relatable tone? It would be really nice if this were how everyone lived. Or would it? How would that even work? Everyone’s rich, so they can hire a private home staff, but then who are these home staffers? This sounds like a caste system. So maybe there’s a happy medium between traditional healthcare, and private. I suppose things could get better and more comfortable for more people by improving the ratio. Fewer patients per medical professional would make it easier for each one to focus, and not be spread so thin. Maybe they could work shorter shifts, and have a better work-life balance too. Is that what I should do? Should I be concentrating all my money on healthcare reform? I’ve always thought that I should be distributing it across a number of causes, relatively evenly, but I’ve heard that it’s more productive in the long run if everyone chooses one or two causes to be passionate about. I dunno, I’ll need to see some numbers. In the meantime, despite my circumstances, things are looking up today. Watch, now people will start taking bets when the next bad thing will happen to me, and maybe what it will be. That’s how it always seems to go. Peaks and valleys. Peaks and valleys. Anyway, I’m going to put all that out of my mind, and just try to live in the moment. Nobody’s rethinking their charitable contributions today. Best not to make any big decisions while you’re on drugs, right?

Thursday, November 14, 2024

Microstory 2279: Fine to Be Discharged

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Guess who surprised me with a visit today? That’s right, it was my old parole officer, Leonard Miazga. He’s been so busy, so we’ve only been able to text occasionally, but he’s felt like a bad friend, not checking in on me until now. It’s okay, I didn’t even think about it. It was nice to see him again, though. Other than that, I have nothing to update you on. Besides the medication issues the other day, my life doesn’t really change that much anymore. I lie in the hospital bed, and stare at the TV most of the time. I do my physical therapy in my own room, and out in the hallway, and sometimes do my exercises on my own without the therapist. Then I watch more TV. The nurses come in to give me meds, and check my vitals. It’s all very routine and unexciting. The hospital, my security team, and the police are not letting anyone come in for interviews, and trust me, they have been trying. Apparently, Leonard had a hard time getting through the human barricade, even though he was on a list of approved visitors. Ugh, I can’t wait to get out of here. I’m not one of those people who say that they “hate hospitals” as if that’s some kind of unique or rare personal characteristic to have. You’re not special. I know that’s mean to say, but no one likes death and disease. I just wanna go home because I’ve been here long enough, and I’m ready to sleep in my own bed. I think I can swing it pretty soon here. A normal person under these circumstances might struggle, but we have a little hospital of our own in our house, and a small medical staff, so it shouldn’t be too hard for me to convince the administrators that I am fine to be discharged.

Wednesday, November 13, 2024

Microstory 2278: Kick Him Out of the Hospital

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Hi, y’all, it’s Dutch. Nick hasn’t had that great of a day today. It started off really good. He met the two people who donated their kidney and liver to him. After they left—and completely unrelated—he started to decline a bit. They’ve been changing his meds around to see what works, and it seems like the combination they’re on now caused problems. He is going to be okay. It didn’t cause any permanent damage to his health. This is just something that happens sometimes. It’s a very tricky and fragile balance. It’s not like there’s one perfect regimen that works with everyone. Like, sign here if you’ve had a double transplant, and then this is all the medication that you’ll need. Every patient is different, not just as individuals, but from the specific situation that led them to needing treatment. No one has lost as many organs as he did, in the same room that he was in, at his exact same age, and blah, blah, blah, blah, blah. It just takes time, with some trial and error. That’s one of the reasons why they didn’t just kick him out of the hospital as soon as he could stand on his own two feet. They’re keeping him here so they can find these problems while he’s still under their immediate protection. We’re all anxious for him to be home, so he can generally be more comfortable and relaxed, but it’s obviously not time for that yet. And also, I think they found all the people responsible for doing this to him, but I’m sure you’ve read all about it in the news, so don’t go trying to use this site as your number one source for information on the investigation. They don’t tell us anything. We receive updates at the same time you do. Anyway, I’m sure that Nick will be able to give you his own thoughts tomorrow. Seeya!

Friday, November 8, 2024

Microstory 2275: Now I Can’t Remember What

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This is finally Nick again. Kelly is typing this for me, but it’s my words. I’m really struggling to keep my eyes open. It’s not even that I’m falling asleep. It just kind of feels really uncomfortable to hold up my eyelids. They feel like huge weights on my face. I do occasionally fall asleep when I don’t want to, though, so it may take us a long time for us to finish this post. I would tell you to be patient, but this isn’t live, so by the time you read this, you’ll have known how long it took us to finish. I’m still in the hospital, as you can imagine, and I’m in quite a bit of pain. I’ve limited myself to regular OTC stuff because I don’t like how narcs make me feel. Before I could advocate for my own healthcare needs—back when I was on the brink of death, and totally out of it—they had me on morphine, or something or other. They continued to give this to me after my surgeries, because that was protocol, and I couldn’t tell them otherwise. It was probably for the best during this period, however, because the pain would have been unbearable, and the hallucinations were worth it if I could remember them. I started being able to remember them before I was lucid, though, so I can tell you about them, if you’re curious. The most common one was that every time I tried to shut my eyes to sleep, a cacophony of unintelligible voices would start to talk over one another in the hallway. I asked them to be quiet, but I think in the real world, I wasn’t saying anything at all. These people obviously didn’t exist. The scariest hallucination was when—sorry, I actually did fall asleep in the middle of this sentence, and now I can’t remember what I was gonna say. Maybe I’ll recall for a future update. I would have written it down earlier if I could have. I can barely move. I’ve not gotten out of this bed since they brought me in. Kelly has had to do things for me, even though she doesn’t work here. I’m hoping I’ll be able to stand up by tomorrow, and then shower on my own shortly thereafter.

Thursday, November 7, 2024

Microstory 2274: Thanks Again

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Nick is awake, and already improving. It will be a constant battle for the rest of his days, but as long as he takes care of himself, and is diligent about his medicine, he should lead a pretty normal and long life. He will always be a transplant recipient, but that won’t be all that defines him forever. Right now, they’re focusing on determining the best cocktail of anti-rejection medication, and also pain management. He doesn’t like narcotics, so that’s really limiting for him. He’s doing a lot of breathing exercises to cope with the pain holistically. Overall, there is not much that I can say so far. We’re very optimistic about his recovery, but there are no guarantees. It’s going to take work, patience, and the aid of a great hospital team. I would like to once again the donors who selflessly gave my friend what he needed to survive, live, and thrive. We still don’t know who you are, but if you give us a chance, we’ll be able to thank you in person. To everyone else, thank you for all of your continued support in these desperate times. Another CauseTogether campaign sprung up to pay for the new medical bills. He doesn’t need it this time either, so we’re just going to turn right around, and donate it to another cause; perhaps to survivors of trafficking, or something along those lines. Oh, I’m typing this up in his room while he’s trying to sleep, so I’m gonna stop here for now. Thanks again!

Wednesday, November 6, 2024

Microstory 2273: Skipping Out of the Building

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Against all odds, the organ donor network was able to find two matches for Nick. One person gave him a lobe of their liver, and another one of their kidneys. I couldn’t tell you anything about them, even if I knew myself. They’re not necessarily anonymous, but the information hasn’t been released yet. Some of their respective families may not even know what they did. There was apparently a really short, but really intensive, vetting processing. Normally, a person would have weeks, or even months, to prove that they understand what they’re doing, and what they’re giving up. But in this case, it was an emergency. I wasn’t part of any of that, so I don’t know how it went down, but I’m grateful to them just the same. All three surgeries are now finished, and they’re in recovery. Nick still hasn’t woken up yet. Well, he has, but he hasn’t been at all lucid. During what little time he was somewhat awake, he didn’t seem to really know where he was, or what was going on. It will just take time, but I’m choosing to be optimistic. We’re still not out of the woods, so I’m not going to break out the celebratory balloons just yet, but he has a chance now. We will know more when he wakes up, and he can tell us how he feels. That’s a very important metric that doctors can only guess. They’ll continue to keep him here for quite a while. They still couldn’t do anything about his spleen or gallbladder, so I imagine his hospital time will be on the upper end of the typical estimate. Once he is healthy enough to be discharged, he won’t be skipping out of the building, though. For the next few months, he’ll be in a state of recovery, gradually getting better and stronger. Dutch and I will be with him the whole time. Even though the surgery is over, he’s still opening doors, hoping to speed up the process, but a part of me is worried about that working. If he becomes immortal again, the donors’ sacrifice might seem to mean a little less. I dunno. I guess in that scenario, they still bought him time, and it was still a profound thing to do. I shouldn’t be thinking about any of this. I just need to go back to making sure he wakes up feeling safe and comfortable.

Thursday, October 31, 2024

Microstory 2269: Until Tomorrow

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It’s Kelly, filling in for Nick just for today. He’s fine, but the DPA had to spirit him away. They won’t tell us anything about it for obvious reasons, but they promise that they’ll have him back tonight. Once he returns, he won’t be able to say anything about it—they were clear about that. My guess is that they want him to answer questions in preparation for his meeting with the President next week. We’re worried, but his primary bodyguard went with him. I feel much more comfortable knowing that he’s not alone. Since he doesn’t have a background on this planet, I suppose this is the best way to assess his intentions. Or maybe they do this sort of thing for everyone. I really couldn’t say. Until tomorrow!

Wednesday, September 4, 2024

Microstory 2228: More Advanced Care Now

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Nick is back in the hospital, and this is where he’ll stay for the rest of his life. It seems that we were too quick to decide that he was capable of staying at home. We weren’t back in the apartment for more than a few hours before he started having some real problems. His temperature was going up each time I checked it, eventually reaching a full fever. Soon after that, he started coughing, and feeling dizzy even though he was just lying in bed. The nurse had already left for the evening, but I called her back, and she agreed that he couldn’t stay there untreated anymore. For a normal healthy individual, these symptoms could be treated on their own using over-the-counter remedies, but Nick is in a really vulnerable position. He requires round-the-clock care, and the kind that I’m not qualified to provide. They conducted rapid blood tests, and confirmed that it’s a virus. Again, a normal person might be able to fight it off on their own, or get some medication after a quick doctor’s visit, but that’s not enough for him. He’s hooked up to machines, which are monitoring him for a team of top-notch medical professionals. But where does that leave me? I know that, when you add it all up, I’ve not known him for very long, but we’ve grown pretty close in that time. I’ve seen sides of him that no one else has. So I can’t just leave, even though he has more advanced care now. There’s a protocol for this situation. It’s called a “hand-off”. And I’ve officially done that, though I am still here, just now as a friend, which is what our relationship was when we were co-workers. He doesn’t have any real family in this world, so I’m going to do what I can to make him feel safe and comfortable, even though it’s not my job anymore.

Tuesday, September 3, 2024

Microstory 2227: Die Eventually Too

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The hospital board has come to a decision. Well, it’s a compromise, really. Since Nick is terminal, and all that we can really do for him is keep him comfortable, and safe from secondary infections, he will be allowed to return home for the time being. He and I will not be alone, though. While I’ll continue to live there, and be available 24/7, a nurse will be coming in every morning for a ten-hour shift. I can provide him with his basic needs, but there are some things that I can’t do, and I think that the hospital wants to cover all the bases. There is no additional cost for this service. It’s a sort of compensation for the generous contributions to science that he’s making by donating his still living body now, and his deceased body in the future. We shall see how it goes, though I’m pretty optimistic about it. This is only a tentative plan, though. If something goes wrong while I’m here, but the nurse is not—or even if the nurse is here too—then they might move him to the hospital for good. The sad thing is that something bad probably will happen eventually. This is all about putting off the inevitable, which may make you wonder, why not just go ahead and check in now, just to be safe? Well, if we surrender to that, why don’t you check into the hospital right now, because you’re going to die eventually too. Life is about living it, and everyone has the right to determine for themselves what that means, and where to do it. Yes, he’ll likely have no choice but to get a room eventually, but why lower his morale now when we have the ability to maintain his high spirits? Anyway, he’s having some trouble speaking these days, but he’s found ways to vocalize his thoughts to me, even while he struggles, so I think I’m going to be able to use his words for tomorrow’s posts.

Monday, September 2, 2024

Microstory 2226: Not Giving Up on Him

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If you’ve been following Nick’s social media posts over the weekend, you’ll know that his health fell into a steep decline. He was still alive, and still aware of me in the room, but he couldn’t keep his eyes open for more than a few seconds, and he had a hell of a time speaking. His tremors went away, though. He was very still. I made the decision to keep him comfortable, and let him have the weekend. I was going to monitor him closely, and check him into the hospital if he did not get better in the next two days. Well, he somehow did get better. He was awake and alert this morning, and able to form full sentences. Sadly, his tremors came back too. It’s like his body shut down to take a break, and now it’s back to how it was last week. So he’s not cured, or anything, but I see it as a promising development. The doctors aren’t so optimistic. This is an unusual symptom for the type of prion that he has, but it’s not unheard of. He’ll go through dips, and come out of them as if he’s gotten better, but then he’ll go right back down. They want to keep him overnight to get a better read on the pattern that he’s on right now, but the dips don’t necessarily warrant a permanent stay, which is good. They expect him to recover from each dip. Now, if he starts having trouble breathing, that’s when things have gotten too bad for me to be able to care for him alone. But until that happens, the medical staff are willing to accept his wishes to remain in a more comfortable and familiar environment. He’s with PT in the hallway right now, trying to keep his brain and body active. The best way to fight the misfolded proteins is to exercise the good proteins. The disease is slowly taking over, so he has to be as much himself as possible. I’ll encourage to keep trying to formulate his own words for these posts to stave off the inevitable for as long as possible. He agrees that this is a good idea. And who knows, he may find himself regaining the ability to type it all out himself. I’m not giving up on him just yet.

Friday, August 30, 2024

Microstory 2225: All Sectors of All Fields

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Nick wrote the social media post that he just sent out. And I do mean that. He was able to stay in control of his arm movements enough to type it out on the computer, and even click the submit button. I’m so proud of him. He tried to write this one up himself too, but it proved to be too difficult, and we’re low on time. We ended up staying in the hospital far longer than we wanted, and I’m not a happy mama bird. I told them that we had a maximum time of five hours, and the researchers who are studying his condition did not adhere to that. I mean, it’s not like they locked him up in the lab, chained him to the table, and started poking him with needles while they laughed maniacally. They just kept wanting to conduct more tests, and asking him questions. There was always just one more thing to try. There was also a lot of hurrying up and waiting. This happens because people will typically not take that into account when estimating the amount of time they need to finish working on something. This is true for most people in all sectors of all fields. Anyway, I don’t want to complain too much, but I am going to seek legal counsel for Nick. We need to get the agreement in writing, so this sort of thing doesn’t happen again. Until then, he’s not going back to that facility unless it’s a medical emergency, or some other issue that I can’t handle myself. I’m sure we’ll get it all worked out. I know that no one made this happen on purpose. But he’s very tired right now, and I have to get his dinner prepared so he can get some rest. Until next week!

Thursday, August 29, 2024

Microstory 2224: Done With My Remains

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I’m back at the hospital. We thought that this was going to be a weekly thing, but it appears that I’m going to have to incorporate it into my daily schedule. It’s a lot of work for Kelly, so I’m giving her a raise. It’s not like I can’t afford it. I’ll be dead soon, and any money left over is going to go to charity since I have literally no next of kin on Earth. Researchers want to poke and prod me as much as they can before I kick the bucket. I have always been a supporter of science, so if I have to suffer for a few weeks to help the world better understand how prions work, then I’m gonna do it with no complaints. I do have a line, though. I’ll still be living at home. That is nonnegotiable. I recognize and appreciate the importance of this research. Nonetheless, I’m entitled to die with at least a little bit of dignity, and some approximation of comfort. Kelly and I agree to go into the facility once a day for a minimum of two hours, but a maximum of five hours. Anything beyond that is too much for me to handle. However, like I said, I’ll be dead soon, and when that happens, they can do whatever they want with my body for however long. The hospital will be in charge of however that works. But it has nothing to do with me; I don’t need anything special to be done with my remains. I know, this has all been so depressing. Maybe I’ll try to write something a bit lighter tomorrow. Maybe.

Tuesday, August 27, 2024

Microstory 2222: Magical Light of Some Higher Being

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Yes, it’s true, I’m back. Hello, my name is Nick Fisherman IV, and I am not from this world. I came here against my will, but I have since given up on any attempt to escape. I’ve suffered from infections, infections, and more infections. I’ve been homeless, on the run, in jail, set free, and hired for a huge job. I’ve gained everything I ever wanted out of my career only to watch it slip from my hands as my tremors got worse by the day. I’m not even typing this out myself. My lifecare assistant, Kelly has to do it for me. Some might not believe it, because she could theoretically write whatever she wants, and I wouldn’t be able to stop her, but I assure you that this is really and truly me. She’s been instructed to transcribe everything that I say, word for word, whether it makes sense to her or not. One day, this disease might start taking over my higher cognitive functions, but for now, my symptoms are all irrelevant. Well, they’re not irrelevant, of course, but they don’t prevent me from thinking, and my thoughts are all that I have ever been. So as long as I still think like me, I’m me, and as long as there is a chance that some part of me is still in there—even everything else is dead—then I still consider myself to be alive. I’m full code, so keep my heart beating until the money runs out. I’ve always felt this way, even before I had heard of DNRs, and all that stuff. My life is defined by a resting state of suffering and discomfort, with a little bit of happiness sprinkled in occasionally. So don’t worry about how I’ll feel about it when I’m hooked up and reliant upon life support machines, and hanging by a thread. I still want to stay in this world, even though it’s the wrong one. I’ve never believed in the afterlife, because honestly, that’s the stupidest thing I’ve ever heard of. Death is about the most ridiculous method you could use to be transported from one plane of existence to another, and anyone who believes in life after death is only fooling themselves. When we die, our bodies decompose, our consciousnesses lose coherence, and our souls recede. We don’t “go” somewhere else to start over, or even more absurdly, to live for eternity in the magical light of some higher being. You only think that that’s possible because someone with a grand imagination dreamt it up, not because we have any evidence that anything like that exists anywhere. The arrogance you must have to not be able to tell the difference between reality and your headcanon. I better end it here. Kelly is scolding me for not being nice. I’m told that people are entitled to their beliefs, as if stupid beliefs only affect the people who are clinging onto them, and haven’t caused all kinds of violence and pain in the world. Maybe tomorrow I’ll tell you about what I’ve been up to, instead of depressing you with my unglamorous philosophical position.

Monday, August 26, 2024

Microstory 2221: Advocating For My Patient

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We had an uncomfortable meeting at the hospital. Some people who will not be named have expressed interest in keeping Nick there for the duration of the rest of his short life. They believe that I will not be able to provide him the care that he deserves to be safe, healthy, and happy. Let’s start at the end with that. Nick is happy where he is, and he’s the only one in the world qualified to determine what will keep him that way. He’s not healthy, and he’s never going to be healthy; he’s dying! I know, they’re worried about secondary infections, but let me tell you, that apartment is clean. He kept it clean before I got there, and I keep it clean now. Both of us understand the importance of sanitation, and avoiding cross-contamination. Hospitals are full of other sick people, many of whom can’t do all that much to keep themselves and their spaces clean. I would argue that the apartment is better than that, because we can keep him contained, and separated from anyone who isn’t up to our standards. There are too many others in a facility. Lastly, safe? What do you mean, safe? I know what they mean. They think that his fans are going to come clamoring to see him—for autographs, selfies, or just to get in the way. But you wouldn’t do that, would you? You respect his safety, his privacy, and his need to keep his distance, right? Anyway, I argued my little heart out, advocating for my patient to the best of my ability, and in the end, we won out. We won, because this is the patient’s decision, and he wants to stay where he feels comfortable. At this point in the progression of this awful disease, that’s pretty much all he can ask for. As I’ve been saying, this is terminal, and the prognosis is short. Even if he succumbs to a new infection, it’s not like he was going to live a long and joyous life without it. Now I have another fight ahead of me, but it may not be up to Nick, or he may not care anyway. As you know, he’s my first patient since graduating from my Lifecare Assistant class, and passing the exam. The hospital, and the agency, are considering replacing me with someone with more experience. I can’t say that I can blame them for believing that I’m not ready for this kind of responsibility, but I one hundred percent am. I want to see this to the end, and I hope that Nick feels the same way. We’ll have to see how that goes.

Friday, June 7, 2024

Microstory 2165: Professional Being Paid

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I feel like my attention has been really split lately, and I’ve been making mistakes at work. It’s nothing that I’ve not been able to fix before someone else gets their eyes on it, but it’s been frustrating just the same, and I need to get my head right. I’ve had all these things coming at me. The warden wants to hire me, though I’m still an inmate in the jail. I have to stay in contact with my parole officer regularly. He’s cool, but that’s just one more thing that I have to worry about all the time. My therapy helps, but it also contributes to the stress of my schedule. Now I have this dumb potential lawsuit with that jerk of a company who apparently doesn’t have anything better to do than go after a small fish like me. I was going to do some more volunteering with Homes for Humankind today, but I had to cancel so I could focus on my regular job. I can’t lose that, or everything good I have in my life, like a great apartment, and plenty of food, goes away. Since I’m not allowed to talk about what I do, there’s not much that I can say, so I can’t even vent. I think I need someone else to talk to. Someone who isn’t a professional being paid to be there, like a friend. Am I lonely? I think I’m just lonely. I’m going to go see if my neighbor is home. Maybe we can have an impromptu dinner together before I have to report for jail this evening. Though, there is one thing that I should really finish up for work that I don’t want to put off until Monday. I wouldn’t be fired if it weren’t done, or anything, but you know me, I don’t like to leave tasks dangling over the weekend. I think a part of me worries that I’ll never come back, so I’ll at least have reached some kind of reasonable stopping point.

Thursday, December 28, 2023

Microstory 2049: Oklahoma

Back in August, my papa was sitting in his wheelchair in the dining room. He was looking up at the map where he and my dad had placed stickers to show which states they had gone to. My papa was only missing two states. He had never gone to Oklahoma or Minnesota. It was hard for him to pick up objects, but he asked me to hand him a quarter. When he let go of it, it fell to the floor. It landed on tails, which he had decided meant that he would be going to Oklahoma. I think he knew that he didn’t have very much time left, because that is where he died. He was sitting in a blue camping chair, watching the sunset with his favorite people. My dad was sitting on his right, and I was sitting on his left. Grandma Daphne, Aunt Cooper, Uncle Currian, and my cousins, Nash, Osmond, and Thatcher were all there too. Even though we knew that it was going to happen, it was sad, especially since I was there to see it. Still, I’m glad that he was looking at something so beautiful when it happened, instead of just staring up at the ceiling, or something.

Wednesday, December 27, 2023

Microstory 2048: South Carolina

My papa didn’t want any more sadness once he knew that he was going to have to leave his family soon. He wanted to have one last really happy memory with us. He decided that we should go down to Myrtle Beach, South Carolina. A lot of people like to go there to party, but they mostly do it in the spring and summer. This was in the winter, around Christmastime. It was the last Christmas that my papa ever saw. According to people who lived there, it was pretty cold at the time, but it wasn’t anywhere near as could as it gets up here in Massachusetts, so we didn’t mind. We couldn’t go into the ocean, but we sat on the beach, and enjoyed spending time together. We didn’t do a lot of activities, but it was nice and quiet, since the party-goers were living their regular lives in other places. We spent a lot of time in the hotel, playing board games, and just talking. I skipped a lot of school in the fifth grade. That’s okay, because I made up all of my assignments, and I wanted to be with my family. Papa was really tired all the time, but he still smiled, and he could still make me laugh. We were lucky for that too. Most people with the disease who were that far along in their journey have trouble speaking. He was sometimes hard to understand, but he could still talk well enough.

Tuesday, December 26, 2023

Microstory 2047: Delaware

Papa struggled with the ALS for many months, doing what the doctors recommended, and trying different medications. Nothing was working, so they decided to go see another doctor. There was a different specialist who lived in Millsboro, Delaware. This is the one who told my fathers that the disease was aggressive. That’s the word I heard my family use a lot: aggressive. It sounds really mean. Some people can live 10 years after they find out that they have ALS, and I wish I could say that my papa was one of them, but he wasn’t. He found out in 2021, and you already know how this story ends. They did everything they could, but that wasn’t much. All they could really do in the end was make him as comfortable as possible. Delaware was not a good trip either. I will probably never go to Pennsylvania or Delaware. I might not even go to North Dakota again. Delaware was the last time that my papa could walk. He had to stay in the wheelchair for the rest of his life. It was hard to see him like that, but I would rather see him like that than not at all.